The most touching collection of words I have ever received on The RahRahRah came not from an admiring commenter, or even from a guest contributor. They came from an anonymous reader. One day, when I checked the visitor stats for this blog, I noticed that one reader from Somewhere Out There was directed to my website after doing a Google search with the following question: "What does a sister do when she finds out her baby sister has breast cancer?"
I don't think it's unusual at all to go online in search of comfort and advice, and my heart went out to this girl, or woman, sitting in front of her computer screen, hoping for the right words to jump out and put her soul at ease. The reader's search took her to my September 2009 article on Marty Lenore Pyhala, the breast-cancer afflicted younger sister of my dear friend, Erin Seitz. Marty was diagnosed with Stage 4 breast cancer shortly after turning 30, and I wrote an article about her situation at the request of Erin, who wanted to do what she could for her sister.
Although the article stands as one of The RahRahRah's most meaningful posts, I felt a little dismayed that the anonymous reader was directed to that article because it really didn't offer much in the way of comfort, or advice. Rather, it was a somewhat indignant rant on the motherfucking bitch that is breast cancer. It was all I knew to say because truth is, I don't know what a sister does when she finds out her younger sister has breast cancer. And it really bothered me to think that that anonymous reader out there didn't find the answers she was hoping for.
So, I approached Erin and asked her if she wanted to write something about this for me, and for the anonymous reader. She said yes, and then other members of her family offered to write as well. In reading what they had to say, it became clear: You simply do what you can. That's not what you would like to do - no, that would be taking the cancer away - but it's all you can do...and you need to do something.
No, I don't know what you do when you find out that your younger sister has breast cancer. And I definitely don't know what you do when your younger sister - or daughter, or mother, or wife - dies from breast cancer. That is a question I wish I could answer now, more than ever. Last Friday, Marty passed away.
I don't have the answers, but I can help other people have their say, and so I'm most honored to share with you the special thoughts of some of Marty's family members (written before her untimely passing).
A sister is forever...
In Loving Memory of Marty Lenore Pyhala, January 10, 1977 - October 15, 2010
Happy Birthday
by Martha Merry (Mother)
Happy Birthday, Merry Christmas, Happy New Year, Happy Easter, Happy Halloween, Happy Arbor Day, Happy Children’s Day, Happy ….
The key word is happy. When a child is born, mothers welcome them into their hearts and homes. When holding an infant and the infant sees another person and starts to smile, the baby smiles with her whole body. Marty was such a child. Even as an infant she loved to see people and would smile totally. Several times I thought Joy or Blythe would be better names for her. I wanted her life to be a joyful one.
Now Marty is a young mother with stage 4 breast cancer. The days are not so happy for her or for the rest of us. When Marty found out she had cancer, it was devastating. It took several days to actually know, which gave a little cushion—maybe it was and maybe it wasn’t. A little warning like that was beneficial for me to adjust to the idea. Once we actually knew, the question became: What is the next step? Now the question is: What will happen next? I am grateful for each day and especially for each good day. In one fell swoop the hopes, dreams, and plans for home and family were annihilated. Instead we go from event to event, chemo to chemo, test to test.
I am also grateful for a family that pulls together. When Marty and her brothers and sisters were young, they fought and indulged in normal sibling rivalry. Now they work together and try to help Marty get through this ordeal. I am thankful for everyone’s care and concern. There is strength in a family that cares for each other and works together.
When I was in college and considering the problem-solution pair, I decided that problems, important as they are, are not the most important part. The solution is the most important part. For this cancer problem we haven’t arrived at the solution we want—complete cure—so we all continue to put one foot in front of the other, hopefully travelling in the forward direction and working towards at least a remission. Even if the future looks bleak and she is considered terminally ill, I will hope and pray for the best. I am grateful for many people in the community who also are concerned for her. Several times people have told me that they either know my daughter or know of her and their prayer group is praying for her.
When I was in 8th grade I came across a car advertisement about turning lemons into lemonade. Even then I thought that was a good idea and have tried to do that in the trials of my life. This trial—having a daughter with cancer—is difficult to find the sweetener to make lemonade. Obviously, the cancer itself will not become lemonade but brothers and sisters pulling together, my being able to pick her up from chemo occasionally, providing transportation for grandchildren to and from school, and many other little opportunities are sweet opportunities.
I will always love Marty and hope and pray for the best.
My Angel
by Gabby Merry (sister)
My sister Marty has breast cancer. My whole life I have looked up to her and wanted to be just like her. I idolized her strength, her wit, her intellect, and her ability to make everyone feel welcome. I remember getting so frustrated with her when I was younger because she always seemed to catch me doing something I shouldn’t and she would demand improvement. As much as I hated those moments when they came, I look back on them now with a deep appreciation and love for my wonderful older sister. I have always felt and still feel comfortable going to her with any questions or concerns I have and her advice, wither it’s what I want to hear it or not, is always helps. I honestly believe that in this life we receive angels to help us, some seen and some unseen, and I am confident that my sister Marty is one of my angels.
I found out that Marty had breast cancer while I was on a year and a half service mission in Ukraine. I had only been there for 3 weeks when I heard the news. The moment they told me that Marty had stage 4 breast cancer, I broke down in tears. I had never thought that my sister could get cancer. They told me she broke her hip because of it metastasizing into her skeletal system, and I completely lost it. The rest of that day I spent in my apartment sobbing, wishing I could be there with her and for her, and pleading with God that all of the good things that come from this service mission will go to Marty, asking Him to bless her with strength, health, and comfort. I remember telling Him that I didn’t need anything, I would be fine but to please bless Marty with the things she needs. I knew that coming home early from Ukraine wasn’t an option for me, so I decided to dedicate the rest of my time in Ukraine for Marty. I decided that Focusing on service and really throwing myself into the work I was to do there would bring extra blessings, after all, I had made a pact with God and there was no way I would half heartedly work at fulfilling my part. It was all I could do to help Marty.
In a way, I felt like I had abandoned my sister because I was half way across the world when she was diagnosed, all through her hip replacement and recovery, and even her radiation and hormone therapy. I would get weekly updates on how she was doing and her treatment plans which I would relay to everyone I knew because I had told all the people I work with and come in contact with about how my amazing sister has breast cancer and to please pray for her. So they all did, Marty without knowing it has touched the lives of so many people. Her perseverance and positive attitude throughout the whole time completely blew me away as well as everyone in Ukraine! Marty is inspiring and when I would tell people about her they seemed to have a new determination in their own lives. Marty’s example was an encouragement to people she had never even met. Even through stage 4 breast cancer she is still my role model and an inspiration to people around her (and half way across the world).
Since being back with my family and with Marty, sometimes I forget how much she has gone through, because she doesn’t act like her life is over or even close to it. She is constantly positive and firmly believes that she can conquer anything that life throws at her and I completely agree with her! Like I said, she is my role model and an inspiration to me in many ways. I can’t express how grateful I am to have her as my older sister. I appreciate her for who she is and I love her more than I can possibly say. I look up to her, and when I was younger I even tried to be her! Of course that didn’t work, and I’m sure I annoyed her countless times because of that, but in my defense, there was no one else I’d rather emulate.
It was hard over Christmas break watching Marty go through Chemo and taking care of her between treatments because that was the first time I ever really realized that there was something wrong. It was the first time I had experienced firsthand the effects that the treatments had on her and talking to the doctors at the end of the week scared me so much! Marty didn’t seem to be phased though, she just took the news and moved on. I’ll admit, I didn’t really know how to act around her anymore, I wanted to treat her like her normal self, but then I felt like I was being insensitive to her and I didn’t want her to think I didn’t care. When we went to Costa Rica for my sister Erin’s wedding it was the same type feeling again. I knew she was hurting and I wanted to help but I didn’t know what to do, or even if I could do anything! My first reaction was to just ignore it and treat her like normal, but I knew that probably wasn’t a good thing. This feeling of not knowing what to do, or how to act drives me crazy! There is nothing I want more than to have my sister know that I love her and I would do and want to do anything that would help her to feel healthy again but no matter what I do or say I can’t escape this feeling of helplessness. There is nothing I can physically do to help Marty to feel better, or to overcome this cancer. That is a hard thing to accept. I don’t think I’ve really accepted it yet. I don’t think I really even want to.
I didn’t realize how hard it would be to write this blog. I can’t seem to do it without crying to the point of giving myself headaches! This is something I don’t enjoy talking about. It’s something I would love to be able to ignore and let it just vanish. But I realize that cancer isn’t just something that will go away. Its something that needs to be fought. Something I’ve learned is that everyone has their own way of fighting. Everyone has their own ways of being brave and their own sources of strength. I am so grateful for prayer because I feel like that is my source of strength and comfort. Especially when I feel exceptionally useless I rely on prayer to plead with God to help Marty and my hope is renewed.
However, I know no amount of prayer can replace heartfelt love and gratitude for someone. So Marty, I want you to know that even though I haven’t always said it, I love you. If there is any way I could take this away I would do it in a heartbeat. I’m sorry I haven’t been there for you the way you’ve always been there for me. I really wish there was something more I could do to make life easier on you because of all the people I know, you deserve it most. I always have looked up to you, and I always will look up to you. You’ve influenced my life more than you can possibly know and I thank God every day that he gave me you as my older sister.
The Older Brother
by Rob Seitz (brother)
When I first learned of my sister Marty's cancer, my initial emotion was one of guilt. Being the oldest, as well as the one with the most unhealthy lifestyle; I had always assumed that I would be the first to be diagnosed with a debilitating illness. It was almost as if I felt, whichever deity is in charge of passing out debilitating illnesses, had somehow missed me, hitting my little sister instead. However nonsensical that may sound it was a tremendous source of guilt. What kind of older brother let's his little sister take his cancer. Or maybe if I would have lived a healthier life, she wouldn't have gotten it in the first place.
I would like to be angry, because anger is what I do best, but I don't know who to be angry with. Maybe the oil refineries in the area that my sister lives, but that doesn't satisfy my need. I want one, or two individuals that I could beat up, and have them take the cancer back. That is a big brothers job, right? So, I guess helplessness is what I mostly feel. I can give support, but I live so far away I am not a part of her daily life.
The good that has come out of this, for me, is seeing the strength that she has exhibited throughout this ordeal. My little daily struggles pale in comparison. If she can remain so steadfast, and determined in her desire to prevail over cancer, I should be able to deal with flat tires, and dirty dishes without whining.
My Sister Has Cancer
by Erin L. Seitz (older sister)
My sister has cancer. My younger sister has cancer. My younger sister has breast cancer. My younger sister has stage four, metastatic, breast cancer. No matter how many descriptive words I use, it all comes down to the same thing. My sister has cancer and I cannot do anything about it. I can’t push it into a mud puddle or trip it as it is running down the hall or run to my mom to tell on it. I can’t even punch it in the face for being a little bitch. I can’t give her a piece of my liver or an extra kidney or bone marrow. I can’t take her pain away. I can’t even promise her it will all work out in the end. It might…It might not. I can’t tell her this is all happening for a reason and it will all be made clear to her at some unforeseen time.
As her older sister, all of these “cannots” are the hardest part. I am suppose to be able to fix it, beat it up and protect her. As the older sister I’m the only one with the god given right to pick on her and torment her. Not this….cancer. How dare it make me helpless. How dare it make her an anomaly. She is too young. Why is she the 1 in 2500? Why not me? I’ve lived a “harder” life. I smoked for a long time, I dabbled in drugs (sorry Mom), I drink more frequently, live in a larger city and am older. Why not me?
This is what I have been thinking about since February 22, 2008, the day she called me. The day she found out she has cancer. Which led to finding out it wasn’t just cancer – it was stage four. Metastatic. It had spread. In the same moment she found out she had it, she found out she had had it for YEARS. And no one ever said: “Hey, go get a mammogram. Your breast is lumpy.” When she was complaining to me about her back and hip hurting I never once suggested she should go to the doctor. As her older sister I should have been able to tell something was wrong. Right? Isn’t that protecting her? Isn’t that what family does? Shouldn’t I have used my “woman’s intuition”? My bond as a sister? This is what has been on my mind the last two years. These are the things I keep thinking about, over and over. The feeling of helplessness and everything I can’t do to change this for her. Everything I cannot do. Over and over and over.
Compared to that, the list of things I can do is very short. I can be the best older sister I can possibly be. If she needs me, I am there. The second she says “move” I am back home with her, my husband in tow. I can be the world’s best listener. I can listen for hours if needed. I can be her escape. Anytime she needs to get away from life she has an out. No chemo, no stress, no responsibility. Only maximum sister time, sightseeing and great food.
And I can walk. And fundraise for research so one day our sisters, mothers, daughters wives, nieces, cousins friends and lovers don’t need to go through this.
Those are the things I CAN do. I can’t take away her pain. I can’t turn back time. I can’t remove the cancer. I can’t promise her a happy ending. I can be her sister and listen to anything she needs to talk about. I can help her forget for short periods of time. And I can do my part to help all of our future generations. That is what I can do.